I don’t know anything, I never have. I learn as I go, what feels right or wrong in my gut. Tomorrow I am supposed to get the new CF drug – Orkambi. My mail service pharmacy people called me last Wednesday and went down a list of questions. I was recorded and it seemed […]
Monthly Archives: November 2015
Gentle Wisdom
I had been sponsoring a child in Egypt for the last eight years until I received a letter saying that she and her family left the Plan USA area. No word, no tangible reason. My eyes just stared at this piece of paper as I have seen this little girl grow up through pictures […]
But So Are We
I never know more than yesterday, unless I say hello to today – My place. I spend hours in this place. I am at my desk where my books are to the right and left of me. Words, countless words surround me; fill me, and always inspire me. My treatment vest is on, shaking me. My nebulizer […]
So Much To Love
The message that came to me that one night driving home, with sharp clarity, and these words do not come lightly: “Tessa, you are not going to live a long life.” I pause. I have already lived long statistically. I hold those exact words and I allow their power to deflate, but – the […]