Check this graph out. I’m so old I’m not even on there. This one here says a little more relevant for my age group. Both graphs are from Cff.org 2019. A reminder of some quick stats: Cystic fibrosis is an example of a recessive disease. That means a person must have a mutation in both […]
Category Archives: cystic fibrosis
Intentionality
The Oxford English Dictionary defines modulation as regulate or adjust, moderate. Adjust or vary the tone or pitch of (the speaking voice). “The Merriam-Webster definition of ‘modulate’ includes the idea of ‘tuning’ to a key or pitch, or keeping in measure or proportion, as well as the idea of ‘varying’ amplitude, frequency, or phase ‘for the transmission of information.’ […]
You got your story
Story, story, story – what makes a good story? I wrote a piece last week and the class workshopped it.I wrote this piece to be imperfect. I am not perfect, and I am a bit scrappy. I am serious about my writing, but I am not overly-serious about it. And there is a point in […]
How Can I Help?
Remember my pharmacy debacle not that long ago? Which one? Good question – The one a little over month ago when I almost had a breakdown. I had to gather my wits and assemble my thoughts. After I wrote that blog, people gave me ideas. One, I reached out to my social worker and basically […]
We Never Forget
A couple summers back I visited my friend in Michigan. She lives near Detroit and in the midst of the Big Three: Henry Ford world headquarters in Dearborn, GMC headquarters in Detroit, and Chrysler Headquarters in Auburn. Here is map to get the lay of the land. Greenfield village is known as “The Village” at […]
Space to breathe
Space to breathe (a draft) Moments shift you Wake you – to become more of you, the you, you haven’t met, yet, soon to be —————————————————- The force: my bottom lifts off the seat, knees hit like a bell swings, I sink, to the floor behind my friend in the driver’s seat —————————————————- I look […]
Good graces
Such good graces that fall upon us – My MN CF provider said today: “Throughout this last year, we have had only one or two CF patients in house at a time, maybe. The inpatient coordinator has had to find something else to do . . . tasks . . . We have never had […]
A fitting response
This week I kept thinking about Lloyd Bitzer’s “The Rhetorical Situation.” Who is he and what is the rhetorical situation? Loyd Bitzer’s “is regarded as ‘one of the most respected rhetoricians of the latter half of the twentieth century,” and his piece “The Rhetocial Situation” is the ‘single most influential piece by a rhetorical scholar […]
I will gladly pay you on Tuesday
This week I had to accomplish two gigantic things – I had to get two of my medications. Pausing – I am working on my approach. I try to be proactive. However there are time constraints and limitations; the insurance companies will not fill or process in advance. I still need to work on my […]
For the love of everyone
I have been working incredibly hard on my final project for class. I created a class with all the assemblages: Syllabus, class materials, research articles, texts, the final project and final essay and I choose to incorporate alternative options for the final project. Then trying to see if I could make the class engaging – […]