I am dancing – a lot.

Orkambi’s prescription is two tablets twice a day, approximately 12- hours apart with fatty food.  The instructions list fatty food options for no confusion.

I took half the dose this morning to test the waters for an allergy.

No – hives.

No – shortness of breath which my nurse said could take place about 4 hours after.

No other noticeable side-effects at this point.

I took my evening dose, two tablets as prescribed.

Many patients say they feel lethargy.  I feel the opposite at this moment.

I had a little bit increased in cough, to be expected; but a shrug of the shoulders really.

I feel as if I can take a deeper breath in.  Then when I blowout it is with more ease.  Or just with ease.

One day at a time.

I have to take care of my liver.  I have taken milk thistle for years to help with my liver function with positive results. And then less alcohol, more tea and herbs.

A good, very good, first day.

A big Thank you to everyone for the well and loving wishes.

Love you back.

Next, Day 2 as we always do.