Well, I had my appt today. My lung function went down again. Honestly I don’t even know how that is possible. I think my lungs are tired, working hard, and like my doctor says it could take months for my lungs to repair. Constantly shedding old tissues and building new ones.

What does that mean? I am going in tomorrow, getting a PICC placed – as two of my friends brought to my attention “Do not get done by a first or second year resident.” Great point!

I will hopefully be out by Saturday because they have to figure my levels and how I respond to the antibiotic as well as a couple other drugs. The course is a full two weeks and I will see where I am at that point as with each day.

I am in semi-denial about all of this. Strange thing is I feel great. I mean really. I feel great physically, and mentally very strong. I think it would be completely different if it was a month ago when I was coughing up a lung. My coughing has decreased 10 times, my weight is steady, my sugars, exercise level. There was that blood episode. I can’t comprehend those Bermuda Triangle incidences. They come out of nowhere and throw you around.

I have no short of breath, chest pain – never do, but still. I have huge capacity for exercise. In fact, I am bringing my running shoes because they have treadmills and I would like to run if I could. I am going to crank my music as much as possible and kick some ass and do some yoga too.

I need a jump start; a “CF tune-up” is what they call it. My doc says I am still healthy and was probably able to handle all the stress, physical challenges this last year because my lung function was so high and now I need a battery boost to get it back or near it.

At this point I have dived about 700cc, almost 3/4 of a liter which is pretty big, no doubt. This is significant and I am totally aware of this – too aware. However, I am one of the healthiest CF people I know for my age. Easy to say because I don’t know that many CF people anymore, but even reading posts on the www.cysticfibrosis.com website, to be my age, my lung function – which is still in the “healthy range” is pretty amazing. I am not saying “I am” amazing – I am saying “IT” is. Someone wants me to be here for all the challenges I have had in my life, and how my body has this amazing capability to repair and rejuvenate.

I have to talk this way at this point. The boxing gloves are on and I am prepared as much as I am going to be at this point. Now on to “Words with Friends”.

I will keep you posted.

And to everyone that is reading this, check in with Sheila please. Caregivers take a huge brunt and she is the best, the absolutley BEST anyone can ask for. xo