And the – NOW

So – things I have been doing since last time I wrote – focusing on the NOW; today; live one day at a time. I feel I have done this for a large portion of my life – but I am narrowing in even more so. I could write an essay on how to live […]

Exercise for Life

Exercise for Life. This is what I do. This isn’t a light blog entry. This is it. I am going to be brutally honest. My lung scores have been relatively stable since January. I haven’t looked back further than that. I do know from 2010 to now I have lost a liter of air space […]

Being in the Know

Sitting here, holding my nebulizer in my mouth, not with my teeth – God forbid, no one believes me that hours and hours of writing papers while doing my treatment and holding my neb with my teeth couldn’t possibly show a grinding-effect on my teeth. Being in the know and not in the know – […]

It’s Coming

I have been meaning to write – time and patience. Since June 15 I have been doing interval training on the treadmill everyday for 30 minutes. I warm-up for 4-5 minutes, incline to the point just below where my heart is going to come out of my lungs for 4 minutes, go back down for […]

Leave it

Quick update: It appears, seemingly that the bed was the source of my ills. A few days after we got the bed out, Sheila and I being brutes and taking it out ourselves; I coughed up crap, lots of it. A duplicate experience from when I worked at the place where there was mold. It […]

“I Believe in Peace – Bitch.”

Love that line. It is one of my favorite Tori Amos songs, “Waitress.” I have been afraid to write; I know it has been a while. I never want to jump before I know what is going on, and frankly – honestly I never know what is going on. But – at times of minute […]

Disbelieve

Fragility of life deserves only the kindest of words and lightest of gestures. “The habit of persistence is the habit of victory” – Herbert Kaufman I would like to think victory, but that is a large word with an even larger meaning, height of heights of achievement. I have been trying to figure out what […]

Behind the 8-ball

I have so many things on my mind. I am going to try and focus. Age. Getting old. I think I heard those words 3 times yesterday. I have a really great team at my CF clinic. I am very fortunate; every day we are fortunate. I had a slight dip in my lung function […]

Soundness

The number one word that comes to my mind again and again is “Thankful”. Then, “Blessed”, “Grateful”, and “Thankful” again. Having employment is grand. I have enough part-time positions, per diem, hours, money coming in, the ability to come in not to worry. Sheila is employed. How blessed. As the positions were rolling out, and […]

10%

I am going to make this one short. Last week I watched videos from the 2012 CF Conference that took place in Florida this last October. I remembered my CF team seemed enthused when they returned from the conference – so I thought I’d watched. Two videos/pictures created clarity as well as rejuvenation – to […]