I haven’t written in a while; mostly because my brain has been too tired, unfocused, just haven’t had any words. Now some have come to mind. The word that comes to mind is belching. I can’t stop belching. It makes me laugh, and it is a bit un-godly. Last two days I have drank 3 […]
Monthly Archives: June 2011
Peace
I am home. Home is ever so nice; peace – that is what home is to me. I have to say though; I had an awesome team that took care of me in the hospital, delightful people. I think I am going to be one of those people that write a letter. I wrote down […]
Thankful
Today has been a good day. I would say great, but I am in the hospital. Got my PICC! People keep saying “someone has some pull around here.” I think my doctor has some pull and is gentle, kind, and is taking small steps with me. And I got my PICC just in time. My […]
Going In
Well, I had my appt today. My lung function went down again. Honestly I don’t even know how that is possible. I think my lungs are tired, working hard, and like my doctor says it could take months for my lungs to repair. Constantly shedding old tissues and building new ones. What does that mean? […]
Balance
Keeping this short: Yuck. I coughed up blood today; 10-12 Kleenexes worth. It was during yoga while we were doing some new breathing exercises (to me), compressing my lungs and expanding them wide. A cough erupted and poof! I almost left but I had only been in class for maybe 15 minutes. I paid for […]
I think I have Turned a Corner
Sunday afternoon; gorgeous outside. Didn’t know if I wanted to write, but then thoughts came. I think I have turned a corner. Since my last post, granted could change anytime, but I am clear to say at this moment in time I haven’t coughed at night; my coughing has become less, less yucky, less explosive, […]
To Keep Flight
I am going to talk about the logistics of CF today. I didn’t even know if I wanted to write anything, but here I am. I have been doing 3 treatments a day. Each about 30 minutes. I have this awful choice to stop it whenever I want out. There are 6 time frames of […]