I keep hearing my doctor’s voice – He puts his hands on my shoulders, stands right in front of me – he was 6 ft tall and I was me – and he says: “You can do this. You have to work very hard, but you can do this.” He would smile, take his hands […]
Author Archives: Tessa
Josh Llewellyn-Jones
I just finished watching “Hidden Figures” for the second time. That is such an inspiring movie. What a great story. What fabulous women. Speaking of inspiration – it’s almost been two years since Josh Llewellyn-Jones did his 24 hours for CF. If you do not follow him – you should. And he has CF – […]
Love Is
Something that I learned this during this last semester – which reminds me I need to check and see if I got my grade again; I really enjoy reading other people’s poetry. I loved and was in awe of a couple classmates use of words, and the fact that they knew these words. I then […]
Light shining through
First, before I start this – I think I just told my mother off and it felt so fucking good I can’t even tell you. She left me a shit-storm of a voicemail, a vortex of insecurities that I have been listening to for all my life. In a very brief response, it went something […]
Phenomenal Woman
Yesterday, I double-checked what all I needed to submit for my portfolio, and of course, I missed or overlooked that I needed to submit ten poems that I liked and the reasons why I liked them. Oh lord. This was separate from the ten poems that I wrote. I think reading “ten” blurred in my […]
SCBWI
The Society of Children’s Book Writers and Illustrators – I went to the New England conference this last weekend. This was pushing it far as it is the end of the semester – but I did it. I had to pack a lot of food, extra food. I had some funny follies I may write […]
Looming Mist
My poetry class is over! Well almost. I still have to hand in my final portfolio by next week. I am sitting here laughing because the last line of this poem makes me. I have enjoyed this class immensely. At the same time, I am super happy to have it done. It was intense. My […]
First words
“I really need to do my treatment.” “Someone want to do it for me?” “Oh.” “Oh well.” First words of the day. Then – “My lungs really need a treatment. I really should do my treadmill. Should I do it now, or later? I don’t really want to do it now, but will I truly […]
Much love
Short and simple – this is what the blog will be. Claire Wineland’s birthday is today. She would had been 22 years old. A light. A light. A light that is missed, yet – will never ever, ever, go out. I am doing what I have been doing, welcoming the day, working hard, trying to […]
God sent
This last appointment was a God sent. It is almost like the Universe has been listening . . . The doctors have been listening as well. The clinic received a grant for a pharmacist to assist CF patients. The pharmacist comes to you; sits down with you. The pharmacist came in and had my medication […]
