Believe

I believe in the impossible. I believe every person has the ability for the impossible. Every waking step, interaction, breath, tied up shoe lace, drop of sweat and tear, sleepless night and glorious day – I believe in the impossible. I think I always have. “Why not?” One caveat – hard work and determination must […]

Planning

You know what the best thing in the world is – sleep. I am thankful for so many things. I will say, I am not thankful for everything, but I am trying. I am so thankful for physical relief. I am so thankful for not feeling nauseous from lack of sleep. I also extremely thankful […]

You

“Can you do 3 treatments a day?” “Some days.” “Try, if you can.” “It is all too much for me.” “You can’t get life insurance?” “No, I don’t live long enough for them to get enough money out of me.” “That discriminates.” “Yes.” Even a 10-year old can do it (paraphrased). The Elements of Style […]

Life

1. Dropped TA class. Never heard back from Professor so wasn’t sure if I was supposed to go today because in the email she said she was going to talk to admin how to proceed. I wrote a follow-up email, no answer. I must be at class by 2pm. I must have materials ready for […]

Steadfast

I have a number in my head. I want that number. A lung score number. I believe I can achieve it. I am realistic and I do not believe it can happen overnight. My PFTs at my appt yesterday showed some improvement. My PFT’s definitely have shown an improvement from a year ago. The number […]

Two Good Somebody’s

I believe in guardian angels. This may sound silly to some, but I truly believe in them. I believe I have two, and I believe I know their names. The reason I know their names is because a friend of mine who one could say is a clairvoyant. I think a psychic would be a […]

Getting It

I am taking a pause for a moment to write about CF. It was just announced at the North America CF Conference (NACFC) that the average or median lifespan for CFer’s just jumped from 41 to 47 – I am sure due to Orkambi. This is amazing news. The variables are in question. Now, there […]