May is CF awareness month – welcome to becoming aware, four

Organ donation and becoming an organ donor – Please become one if you haven’t already!

Organ transplant – two words that sit in the back of many if not most CFers’ minds.

There are a few people in my life that inspire me and one of them is Claire Wineland.

This girl has gone through twenty times more in half the years than me. She has made the critical decision to have a lung transplant or at least attempt to get on the list.

I am not going to explain Claire, as I think she does it best herself.  A quote from her most recent post:

“Normally I do not post pictures of me doing my treatments because people like to feed off health drama but this one felt special to me. It was taken on the first trip down to San Diego for the first stage of the lung transplant evaluation debacle. We were so worn out and overwhelmed and just sorta walked around feeling like we wanted to cry and not totally understanding why. I feel very blessed to have so many people willing to go through this whole shit storm with me, it’s a miraculous part of humanity that we are willing to suffer along with someone to ease their burden. There is something tremendously powerful about being close to another person’s pain and letting them know you will go through it with them – i would have crumbled a million times over without the people I love. I’m just very grateful to those who are shouldering this burden with me.”

A very special girl, 21 years old.

#Clairewineland

#organdonation

Follow Claire on Instagram, Facebook, youtube, etc.

Here is a couple of her YouTube videos, the bottom one is her latest.