My poetry class is over! Well almost. I still have to hand in my final portfolio by next week. I am sitting here laughing because the last line of this poem makes me. I have enjoyed this class immensely. At the same time, I am super happy to have it done. It was intense. My […]
Author Archives: Tessa Weber
First words
“I really need to do my treatment.” “Someone want to do it for me?” “Oh.” “Oh well.” First words of the day. Then – “My lungs really need a treatment. I really should do my treadmill. Should I do it now, or later? I don’t really want to do it now, but will I truly […]
Much love
Short and simple – this is what the blog will be. Claire Wineland’s birthday is today. She would had been 22 years old. A light. A light. A light that is missed, yet – will never ever, ever, go out. I am doing what I have been doing, welcoming the day, working hard, trying to […]
God sent
This last appointment was a God sent. It is almost like the Universe has been listening . . . The doctors have been listening as well. The clinic received a grant for a pharmacist to assist CF patients. The pharmacist comes to you; sits down with you. The pharmacist came in and had my medication […]
A good orange hat
My spirit is reaching. Endurance. Strength. I have to say I truly dislike the month of February. I don’t know if it has to do with the exact opposite of my birth month – some sort of polarization going on, or just that the month is difficult with weather and a lot of darkness. I […]
Dreams
Today is a great day. It is the last day of Tobi. I am doing my second dose earlier than recommended, but I don’t care. I want to be done for this month. This precious hour is my hour that is on loan every other month. It isn’t bad, it is just nice when I […]
Settle in and break through
My head is buzzing. I am not sure why my head is buzzing – I think I need to exercise. I will, soon. I also have three projects roaming around and I have made progress on two of them – I think that’s good. Tiny, fun, fruitful, bouncing bits of energy. So, I decided to […]
The Artist
I am reading two books: Becoming by Michelle Obama, of course. And a little fluff – and yet not fluff. It’s actually quite interesting: The Most Beautiful: My Life with Prince – Mayte Garcia, Prince’s first wife. In the book, Mayte writes: “We shared a common belief that whatever you’re passionate about, you should learn about […]
Silliness
“Take on step off a hundred foot pole.” It means, can’t rest at your success. Or your failure. “I have written something wonderful.” Good, but it is a new moment. Write something else. – Natalie Goldberg, Writing Down the Bones I have written anything yet this New Year. I needed a rest. I needed to […]
Nutshell
Yesterday I did my repeat PFT and it went up 5%! It actually went up 7%, but I am not sure if that is accurate. I am never sure if any of my PFTs are accurate, but that is the score, recorded in time. I had made the decision that if my lung scores stayed […]
