Some of you already know the latest update, some don’t; this is the easiest way . . . Sitting down in the pulmonary lab’s chair for my pulmonary function test (PFT), I didn’t have the best feeling about it. I take a couple normal breaths, I inhale as fast I can, then I blow-out as […]
Author Archives: Tessa
Until Tomorrow
Tomorrow I have my doctor’s appointment. I wish I could care more than I do. I do care – but I don’t. I rescheduled this appointment, so it has been 5 months instead of my regular 3 months. The ebb and flow of life . . . I think I am taking a more relaxed […]
It’s Time
It has been a long time. When I am doing, moving, changing a lot, I don’t write a lot. Writing is reflective, an assembly of my thoughts. How have I been lately is crap, literally crap. The funny thing is I don’t usually give into the crap feeling state; I hustle and charge on through. […]
No Title This Time
What can you believe? I just read an article on what the actual cost of the CF drug already on the market to help 4% of the CF population is – $294,000/year. This crushes me a bit. I knew it would be high – Damn. I don’t want to be like the Russians. I read […]
Bollocks!
I have hammering out P90X and P90X2 months, and have been doing awesome with it. I have been building muscle that I have never been able to do – but I need to do up the Annie. I read my last progress note, and even though I am in the “normal” range for my PFTs, […]
It Should Not Be
When was your defining moment? Mine, I have been thinking about a lot lately. The trajectory of life; the landscape that changed; one you could not turn your back on; one that came to you? I was 16 – young, right. I remember distinctly. A series of events lead to this point. Common teenage issues […]
Gratitude
I have been trying to compile all these positive and negative energies surrounding us: What to do with this information? How to filter it – taking it in, processing it, while not having it suppress us at the same time? I don’t know if I will be able to accomplish this in this post, but […]
So Simple
I started writing this two weeks ago; wasn’t sure where I was going. I decided to leave it actually. We have arrived. I am not exactly sure what that phrase means, but my thoughts keep repeating it. 2012 is going to be “blank” year. What exactly, I am not sure. It is early, but my […]
Imagining Just That
Having high expectations is difficult; I believe I was born this way. My physician told my mom and dad at one point in time, when I was quite young – not too long after my diagnosis “You have to be perfect like God – and even then Tessa may not live” regarding my treatments, medicines, […]
The 3 musts
There are so many things on my mind I am not sure where to begin. Primary, is the excitement I cannot contain regarding the development of the new drug that treats CF at the cellular level: VX-770. Then, the trial that is in Phase II: VX-770/VX-809, which is aimed for my genetic mutation is also […]
