Love that line. It is one of my favorite Tori Amos songs, “Waitress.” I have been afraid to write; I know it has been a while. I never want to jump before I know what is going on, and frankly – honestly I never know what is going on. But – at times of minute […]
Category Archives: cystic fibrosis
Disbelieve
Fragility of life deserves only the kindest of words and lightest of gestures. “The habit of persistence is the habit of victory” – Herbert Kaufman I would like to think victory, but that is a large word with an even larger meaning, height of heights of achievement. I have been trying to figure out what […]
Behind the 8-ball
I have so many things on my mind. I am going to try and focus. Age. Getting old. I think I heard those words 3 times yesterday. I have a really great team at my CF clinic. I am very fortunate; every day we are fortunate. I had a slight dip in my lung function […]
Soundness
The number one word that comes to my mind again and again is “Thankful”. Then, “Blessed”, “Grateful”, and “Thankful” again. Having employment is grand. I have enough part-time positions, per diem, hours, money coming in, the ability to come in not to worry. Sheila is employed. How blessed. As the positions were rolling out, and […]
10%
I am going to make this one short. Last week I watched videos from the 2012 CF Conference that took place in Florida this last October. I remembered my CF team seemed enthused when they returned from the conference – so I thought I’d watched. Two videos/pictures created clarity as well as rejuvenation – to […]
I have to
I am not exactly sure how to start this post. The tug-and-pull between my positive, negative, and realistic sides of me is always at play. Sometimes you just have to state what is. So the “what” is that when I was talking to Sheila this last week about my upcoming appointment, then tears just came […]
Forward –
I am switching things up again. I am so excited, I ordered a treadmill. It is going to have speakers where I can hook up my Iphone and Madonna will be blaring through it. This is MY early Christmas present. I want to primarily use it for walking, walking fast on a slight incline and […]
Smack
A couple people have asked me why I started this blog, since I sent out requests to follow me. Simply, I never ever really talked about my health most of my life. At least I don’t think I have – people who have been around me my whole life, correct me if I am wrong. […]
Re-Thinking
Some of you already know the latest update, some don’t; this is the easiest way . . . Sitting down in the pulmonary lab’s chair for my pulmonary function test (PFT), I didn’t have the best feeling about it. I take a couple normal breaths, I inhale as fast I can, then I blow-out as […]
Until Tomorrow
Tomorrow I have my doctor’s appointment. I wish I could care more than I do. I do care – but I don’t. I rescheduled this appointment, so it has been 5 months instead of my regular 3 months. The ebb and flow of life . . . I think I am taking a more relaxed […]