Day #3: The Fork Stripped, back to the basics. Shaking hands, walking the same pace, rhythm, breath. Here I am again. The last time I remember crying in my doctor’s office is when I was 14 years old, maybe 15. Different reasons, same everything. My pulmonary function scores (PFTs) went down again. Just staring, not […]
Category Archives: cystic fibrosis
Words from the Past
Rereading, rethinking, this is some words I have written in the past. Perhaps some wisdom from my previous self I can gain, maybe not. One day a friend of mine asked me if cystic fibrosis made me feel if I was the walking dead. Quite taken back, I said, “No.” What in the hell does […]
Numbers
Last night I said to my partner, “I don’t want to go to my doctor’s appointment. I don’t want to care about the numbers. I want to live, I want to breathe, I want to exercise, go to work, do yoga, play with my dogs, eat, love. I don’t want to care about the numbers. […]
How to Get Rid of This Green Goop
What works? I don’t know what works. I have to create again. I have to think out of the box. I have to get rid of this green goop I keep coughing up. Shaking my head . . . Cystic Fibrosis. Something tied to my identity all my life. Words I have heard again and […]