For two nights I have gotten real sleep. Seriously the best thing in the world. I got my PICC out on Tuesday which now leaves for the real healing to begin. IV antibiotics tear your gut apart. I have been on a real good probiotic and eating yogurt once or twice a day – still, […]
Blessings
I wrote this last night, always a work in progress. I got my Picc out – so happy. I am getting there. Blessings Blessings are often those soft voices you allow yourself to say – in an open and closed space for only you to hear. In hope against hope, for the message you […]
Airlife for Life
This schedule is tight and a little tough. I am up late every night. I am ready to be done with IVs, but only if it is the right time. I have an f/u appointment with Children’s again this week. They have been extremely thorough and kind. I emailed my doc in MN to give […]
Bolt
I had a very busy day yesterday. Today I am taking the world in. So – one fine day in the hospitable, a nurse aide comes into my room and asks to take my vitals. Sure, of course. I just got back from my walk. This walk was where I moved my IV monitors onto […]
Home Sweet Home
Have I ever told you that a very large percentage of the time when I fly I get the guy or woman that likes to lean their chair back, oftentimes way back cutting into my precious airspace? In the past while setting my head down on my pull-down table, just when my eyes finally close […]
The Gopher Way
I have not written in a while because I have not been well. I have not had the health to write. Something small turned into something much larger. Last week I came into the hospital with shortness of breath, and come to find out pneumonia is real. I don’t want to write much about how […]
Mending the pieces
I have been quiet because I have been blessed with diseases. However, drinking lots of water, rest, treatments, and drugs – seem to be muting and resolving them. And just knowing – this to shall pass, really does help. For some reason, yogurt tastes phenomenal; smoothe and comforting. Not to mention – I am very […]
As we do, how we do
My ears will not stop filling and popping. Life is muted and then confetti! Today, today, oh glorious day – I think I can muster some thoughts together. I have had this cold for almost a week, seemingly working its way out. I have been doing three treatments when and where I can, sometimes just […]
2000%
What a great day – My PFTs went up 5% – which is pretty amazing. However, I can’t take full credit. Yes, the air came from my lungs, but the respiratory tech showed me a new technique – a technique I had never been shown before. The last time I went to my doc’s in […]
Two to Share
BIG NEWS! Vertex announced a new drug application to the FDA – it’s a big deal. Link at bottom. To add – I just want to say that people in Minnesota are so nice. There is the passive-aggressive behavior no doubt – but when a Minnesotan is nice, they are genuinely truly nice. I have […]