The world is full of miracles – One just, must, be open To welcome them in. I am a dreamer. That is who I am. Every word, every thought, every sentence, Smile, leap, goal, exchange – I am a dreamer. I have many dreams. Each dream comes from each spirit, each tree, and each good […]
Category Archives: cystic fibrosis
Steady
I am taking a poetry class and last week’s assignment is an “I want” poem. At first I had difficulty with this because I don’t like to pull from the Universe because then you only focus on what you don’t have vs. what you have. And then two-fold, you put out into the Universe you […]
Keys
I haven’t written in a while, mostly because I was sick and I don’t write how I am doing when I truly do not know how I am doing. I developed that rotten cold that was really a flu two days after I got home from my trip. Two days in I started one oral […]
Harmony, UK
Once upon a time there was a girl and her massage treatment devices. Stop. Brake. Once upon a time there was a girl that was required to have her parent’s pound on her for several years of her life that took countless hours of her life – only to have this small wondrous, but old […]
The Will
The greatest things in life you cannot see. The will to live. The love you give. The air you breathe. The energy all around, Giving each one of us The strength to proceed. Each one is intangible to our eyes, but not our hearts. And each one pushes us believe that there is something that connects, […]
Thank you, Dr. Warwick
Sitting in the CF Minnesota clinic this last December, a nurse hands Dr. Billing’s, my new CF Minnesota physician, an old 1980’s official-looking record with Dr. Warwick’s signature on it. Dr. Billing’s delicately takes the piece of paper setting it down ever-so gently, around its edges, ensuring not to wrinkle but to preserve. She […]
Today, is –
Today is, has just become one of the best days – My liver function tests came back completely normal. Not one elevation. Not even close to a elevation. Which means – I can continue taking my new drug. This almost leaves me speechless. Speechless for a few moments anyway. Somehow, somewhere, even with all the […]
All of Life’s Wonders
“All good books are alike in that they are truer than if they had really happened and after you are finished reading one you will feel that all that happened to you and afterwards it all belongs to you; the good and the bad, the ecstasy, the remorse and sorrow, the people and the places […]
4.11
The other day at work, I eyed the stairwell. I haven’t done the stairs since October. This would truly see if my lungs are improving, or if the medication is truly opening my lungs. “Let’s not think about it. When I am ready, I will be ready.” I was too tired at the end of […]
Just like my Dad
I have been told all my life that I am “just like my Dad.” It has been said not always in the most positive connotation by the way. I don’t exactly know what that means. What I do know about my Dad is he is the most calm and level-headed person I think I have […]