I have been reading a fair amount this winter break from school, but I think my neurons have been a bit fried to write all that much. I have been sleeping a lot. But I have been getting the best sleep I think ever have. My educated guess is because my body is functioning with […]
Category Archives: cystic fibrosis
Nicole
“Have you ever had to drink this stuff?” Nicole asked. “No,” shaking my head. She was hanging onto the jug of Golightly making a sideways face, her eyebrows lifted. Me, I was on my way to work at medical records at the U of M, passing through the pharmacy. Nicole and I met when she […]
Carry A. Nation
Today the name Carrie Nation came to mind; aka. Carry Nation or Carry A. Nation. She was a robust woman, standing about six-feet, born in the mid-1800s that was a stern believer in prohibition and the temperance movement. She believed that alcohol tore families and societies apart – as it did her own. She married […]
Happy New Year’s!
I love food. I think food and drinking coffee are my favorite past times. I had my first colonoscopy with success! “Normal” – such a great word. My goal was to get it done by the end of the year. I squeaked it in. I worked hard on my prep. CFers have the extended, long […]
The Road
I think I barely got by with an A this semester. I handed in a draft of my final paper a week and a half ago and had to tie-in more of the semester readings. I knew it wasn’t grounded that much in the readings, more of a leaping-off point. Truthfully, some of the readings […]
High-pitched snarly gear
I have been absent writing and reading; trying to wrap up my class. I still have to make some edits . . . My brain is quite tired tonight, so forgive me. Yet, I want to say a couple things. I want to say that going to graduate school has been one of the best […]
Thank you
When you live with a life-threatening condition – and I am not even going to put that in quotations or downgrade that – you always plan and prepare for the worst. You plan and prepare to when you can’t anymore. I save, I don’t do things I would really love to do – because getting […]
The More I Write
Remember I was talking about goals the other day – well I refinanced a loan of mine for a lower interest rate. So great. And good news – I haven’t focused on my impending hospital bill. Knowingly I have already maxed-out with my pharmaceuticals and knowing approximately the damages. The total of my two-week stay […]
Learning
I recently started talking to someone, a professional. Someone separate from the hospital. A different space. I caught myself a couple times saying or thinking, “I think I need to speak to someone.” My brain notes – I am speaking up which I do not always do. I always have someone I can talk to, […]
Peculiarity
Something very peculiar is happening . . . I am not coughing. I may cough once or maybe twice in any given activity but I am not coughing into a spiral or bronchospasm. I am not coughing when I get out of bed. I am not coughing when I lean over to put my socks […]