On my way to work on the bus August 9th 6:32am, I wrote this: “CF is not my opposition; CF has never been my opposition. I shake hands to receive its’ gifts, as I keep stride in the ‘mist’ (middle) of storm as well as its’ calm. Never think I can out-run, out-do, as if […]
Breathe Easy
It is time for me to write, because I know things are swimming around but haven’t flushed through them yet and need to do so. I have started my inhaled antibiotic as of three days ago. It seems strange to be doing the antibiotic when I don’t feel I need to. That is one of […]
Ziggy Stardust
It is blazing hot out today. A 100 or so with combined heat index, temperature, humidity – hot – DEATH-defying hot. I re-read my last post; I had a lot to process – a lot! Since I wrote last, I changed my position a bit. I have decided to take this opportunity to get in […]
Follow-up
I had good news, although my mood isn’t fitting the good news. My pulmonary function test (PFT’S) went up, great! Yes! Yes! It was my last big blow which I thought I was going to hit the ground, but it was the strongest of the 4. It was 2.97; my last visit highest score was […]
Reminder
I have been absent. Where have I been? I have been getting healthy, again. Slowly the daily PT visits came to a stop. Two days before my last visit I basically said to Nancy the physical therapist: “So, I am scheduled until Wednesday the 29th, and she said, “Yes.” I said, “I feel great. Sheila […]
Words
I haven’t written in a while; mostly because my brain has been too tired, unfocused, just haven’t had any words. Now some have come to mind. The word that comes to mind is belching. I can’t stop belching. It makes me laugh, and it is a bit un-godly. Last two days I have drank 3 […]
Peace
I am home. Home is ever so nice; peace – that is what home is to me. I have to say though; I had an awesome team that took care of me in the hospital, delightful people. I think I am going to be one of those people that write a letter. I wrote down […]
Thankful
Today has been a good day. I would say great, but I am in the hospital. Got my PICC! People keep saying “someone has some pull around here.” I think my doctor has some pull and is gentle, kind, and is taking small steps with me. And I got my PICC just in time. My […]
Going In
Well, I had my appt today. My lung function went down again. Honestly I don’t even know how that is possible. I think my lungs are tired, working hard, and like my doctor says it could take months for my lungs to repair. Constantly shedding old tissues and building new ones. What does that mean? […]
Balance
Keeping this short: Yuck. I coughed up blood today; 10-12 Kleenexes worth. It was during yoga while we were doing some new breathing exercises (to me), compressing my lungs and expanding them wide. A cough erupted and poof! I almost left but I had only been in class for maybe 15 minutes. I paid for […]