I figured out what that blood-clotting drug is – and I am happy I went with my route. The difference is that drug stops the ability to clot and what I am doing thins the blood. I find it slightly alarming that there is a “one dose fits all” kind of deal for that drug […]
Category Archives: cystic fibrosis
Mrs. Tiggy-Winkle
I love life, I really do. Grow, expand – believe, push, take a deep breath and think and say some more. Narrow in on your goals; watch, feel the distractions, hindernesses fall not like feathers but big bricks that smash double-pane windows. Not your windows – No. The hindernesses. I love school. I love this […]
Today
I have listened to John Butler Trio’s “Ocean” thousands of times. I saw them in concert last year and by the end, tears. One of the most endearing books I have ever read is Hey World, Here I Am! by Jean Little. I found it in my local library and decided I could not let go of […]
In Truth
Last week while waiting for the nurse practitioner to come in the social worker steps in, “How are you, Tessa?” I’m fine, good. She looks at me in concern – “How are you fine?” I am fine, by me. In my head, I am thinking of a lot more than that – but really I […]
Real
For two nights I have gotten real sleep. Seriously the best thing in the world. I got my PICC out on Tuesday which now leaves for the real healing to begin. IV antibiotics tear your gut apart. I have been on a real good probiotic and eating yogurt once or twice a day – still, […]
Blessings
I wrote this last night, always a work in progress. I got my Picc out – so happy. I am getting there. Blessings Blessings are often those soft voices you allow yourself to say – in an open and closed space for only you to hear. In hope against hope, for the message you […]
Airlife for Life
This schedule is tight and a little tough. I am up late every night. I am ready to be done with IVs, but only if it is the right time. I have an f/u appointment with Children’s again this week. They have been extremely thorough and kind. I emailed my doc in MN to give […]
Bolt
I had a very busy day yesterday. Today I am taking the world in. So – one fine day in the hospitable, a nurse aide comes into my room and asks to take my vitals. Sure, of course. I just got back from my walk. This walk was where I moved my IV monitors onto […]
Home Sweet Home
Have I ever told you that a very large percentage of the time when I fly I get the guy or woman that likes to lean their chair back, oftentimes way back cutting into my precious airspace? In the past while setting my head down on my pull-down table, just when my eyes finally close […]
The Gopher Way
I have not written in a while because I have not been well. I have not had the health to write. Something small turned into something much larger. Last week I came into the hospital with shortness of breath, and come to find out pneumonia is real. I don’t want to write much about how […]