A long, long time ago I came across this book titled – Understanding Cystic Fibrosis a useful guide for families and patients, published in 1998 by this doctor. It was extremely useful with its charts and graphics. It described the genectic mutation and the gate keeper who just didn’t know how to do his job. […]
Category Archives: cystic fibrosis
A fork is a fork
Many moons ago I took an American Sign Language (ASL) class. It required me to choose me, sounds silly right? Stand up straight. Sign with confidence. Choose your dominant hand, And lead. What I also learned is a wall is a wall; a fork is a fork; a chair is a chair. Don’t question the […]
To be a Luddite
Exhale. I wake up and within five minutes Accredo pharmacy is calling. I look at my phone and they have already called me once. They have called me once each day over the last three days. You say, “Obviously, you need to call them.” Yes, I know they want to refill a med, and I […]
Bag of apples
Story – the magic of storytelling. The other day I wrote about the absurd. I believe you have to write about the other, the in-betweens, even the absurd between your story arks. If you string your readers along with glowing, sparkling Christmas lights all the time, it doesn’t do you justice. The reader has a […]
Snap!
Two short stories: I. When you lived in a town where there was only one television channel, and you lived in a house whose matriarch believed the devil was in tattoos and Halloween was “All Hallows’ Eve;” where souls have not yet reached heaven. It was our duty (not mine specifically) to light candles to […]
Thankful beyond
Last year at this time I was quite sick. This year, today, I am not. I am thankful beyond words. I want to share this video. Tamar Greene who played Washington in the Chicago production of Hamilton. Boy – does he have a beautiful voice. https://youtu.be/-nU-ZDci9FA I hope everyone is well. There is so much […]
Expandable meaning
Do you remember The Neverending Story? Written by the German author Michael Ende – Die unendliche Geschichte I loved it and it scared the shit out of me. You have the small boy Bastian mourning the loss of his mother – very heavy. Then he encounters the bullies while walking to school. He runs into a bookstore, slams […]
The wind broke loose
For folks who know me or have been following me may have narrowed-in to a reoccurring theme or themes. Let’s see: Believing in the impossible, is a decision not an option. Time heals everything. Everything is time. I am incredibly imperfect, I try to do better, a daily and lifetime effort. I feel bad often […]
Louisa, Louisa
Pushing through, that’s what we have to do. Goodness. Goodness, where have we been and where are we going? One of my favorite little books is called Hey World, Here I am! – Jean Little What is so cool, or amazing about Jean Little, when you turn to the back page and read this short biography. It […]
Keep Schools Closed
This last week I had a conversation with a teacher friend of mine to get firsthand what’s being said and planned. I asked her if I can write about it, basically handing over this platform to her, because I really wanted to know and share what is or isn’t being talked about relative to planning. […]