When I turned eighteen and a couple odd months after, I had an appointment with my CF clinic. Dr. Warwick asked me if I was on my parent’s plan, how I was getting health insurance, and what do you need? I said something to the fact that “I was about to get kicked off my […]
Category Archives: cystic fibrosis
Listen –
I chatted with a couple friends this last week and I was reminded about a couple things – and came to a couple conclusions. One, I was saying how much I need time off. I know a lot of people do, but I am just speaking for me. I am not undercutting someone else. I […]
Shine that kettle
People ask me over and over again how ten-minute timed writings can translate into short stories, novels, essays. Then they ask me, “But what do you do with these timed writings?” My answer is, “I don’t know.” I mean that. What do I do after I drink a glass of water? I suppose I put […]
SexyBack
“When someone writes a Mommie Dearest memoir – where the narrator is presented as an innocent and the subject as a monster – the work fails because the situation remains static. For the drama to deepen, we must see the loneliness of the monster and the cunning of the innocent” – Vivian Gornick This is […]
American Pie
One of the best feelings in the world, where my stress from my shoulders drop to my feet and out my toes is when all issues are resolved and my medications are on their way. I woke up and made a couple phone calls. Not getting my medications is exhausting beyond words. Fighting for them […]
Revolution
I was really, really, really trying not to write about this. However, my anger towards the powers at be is too large. There is going to be a revolution in this country. It is coming. The water is boiling, and people are taking to the streets. I also want you to pay very close attention […]
The Situation
I have so much reading to do and so much writing to do, I can’t even tell you. It isn’t just the semester work, it is my final project. I have five or six books so far in my possession that I need to read for my final project. I am guessing I will have […]
Looking up
“Coon Rapids family copes with CF disease” – ABC newspapers November 2, 1979 Two-year-old Tessa Weber acts and looks the same as any other child her age. She is except that Tessa suffers from Cystic Fibrosis, the most common genetic disease in America and the number one genetic killer of children. From her parents, Robert […]
My feet. My lungs.
“Only the Lord saw the midnight tears.” – James Baldwin I liked this quote. I just realized something this weekend that will make my life incredibly easier, incredibly simplified. It is almost too easy. If I want to travel more internationally, and which I do – in order to do that, I will have to […]
Just thoughts
I am getting excited for this semester. I mentioned I am taking a class on memoir, which also essentially means I am also taking a class on memory, and how we remember. In Professor Melnyczuk’s words: We will pay special attention early in the semester to the hazards of memory: how far do we trust […]