I exhale. I feel like I am climbing a mountain. Not just with CF, although I think that it is where it began; but showing, being, acting as if one should. “Be the change you want to see in the world” – Ghandi. Apparently I am striving to be like Ghandi, kind of a lot […]
Category Archives: cystic fibrosis
Just Saying
An old classic, “Fumbling Towards Ecstasy” by Sarah McLachlan, can’t go wrong with that . . . When I was in yoga today, I had trouble of letting go and focusing on the practice. It felt good, nonetheless; but a little trouble. I printed some communication notes from my CF doctor to my primary about […]
As One
Trying to find my words. I know they are here somewhere. I am in my sixth week of P90X. My strength is building. I am getting definition I have never had. With most CF folks, if you know or not, it is hard to build muscle. I did a glucose intolerant study in my early […]
Protein Pac Man’s
It is funny, because I feel as if I should say “Hello” each time I start a new post; so, “Hello”. The challenge at hand: to sustain. I am in my fifth week of P90X. I can feel the difference in my strength. I feel energized, yet exhausted at the same time. Twice this last […]
Swish, Bam, Boom!
On my way to work on the bus August 9th 6:32am, I wrote this: “CF is not my opposition; CF has never been my opposition. I shake hands to receive its’ gifts, as I keep stride in the ‘mist’ (middle) of storm as well as its’ calm. Never think I can out-run, out-do, as if […]
Breathe Easy
It is time for me to write, because I know things are swimming around but haven’t flushed through them yet and need to do so. I have started my inhaled antibiotic as of three days ago. It seems strange to be doing the antibiotic when I don’t feel I need to. That is one of […]
Ziggy Stardust
It is blazing hot out today. A 100 or so with combined heat index, temperature, humidity – hot – DEATH-defying hot. I re-read my last post; I had a lot to process – a lot! Since I wrote last, I changed my position a bit. I have decided to take this opportunity to get in […]
Follow-up
I had good news, although my mood isn’t fitting the good news. My pulmonary function test (PFT’S) went up, great! Yes! Yes! It was my last big blow which I thought I was going to hit the ground, but it was the strongest of the 4. It was 2.97; my last visit highest score was […]
Reminder
I have been absent. Where have I been? I have been getting healthy, again. Slowly the daily PT visits came to a stop. Two days before my last visit I basically said to Nancy the physical therapist: “So, I am scheduled until Wednesday the 29th, and she said, “Yes.” I said, “I feel great. Sheila […]
Words
I haven’t written in a while; mostly because my brain has been too tired, unfocused, just haven’t had any words. Now some have come to mind. The word that comes to mind is belching. I can’t stop belching. It makes me laugh, and it is a bit un-godly. Last two days I have drank 3 […]