I have been reading “Ernest Hemingway on Writing” – inserts of quotations in letters. Topics such as “What writing is and does”, “The pain and pleasure of writing”, the list continues. One such quotation to paraphrase, love and “writing hard (are) the two things (that) are run by the same motor” (Phillips, 55). While riding […]
Category Archives: cystic fibrosis
Stepping In
This weekend is the North American Cystic Fibrosis Conference. At least 4,000 plus physicians, nurses, research scientists, respiratory therapists, physical therapists, nutritionists, social workers, and pharmacists are present thinking, exchanging, and sharing with folks here in the US, but with others from 42 countries worldwide as well. A coming together: A place where energy is […]
Knowing Absolutely Nothing
When I was 16 years old, Life said hello and never allowed me to say another. My communications class assignment was to give a three minute speech on something I knew. Hard enough for a beginner, a shrug for the professional. I had no idea what I knew, but I knew CF. I knew it […]
More to do, More to be done
Natalie Merchant and the 10,000 Maniacs – brings me right home. The MTV unplugged album. It settles in like a cozy blanket and a good book. Countless hours I spent listening to this album and studying away. The melody and beats open the door to you, giving you just-the-right-amount-of time to cross the threshold. Extending […]
Clear the Slate
I have been wanting to write all day. I have notes written everywhere. My little inspiration notebook, notes in my phone, tiny pieces of paper – with no time to collect and form a full thought; a paragraph of thoughts. It has been driving me nuts. The worst thing for me is to have words […]
How Lucky Am I?
When you are young all you want is love and support, before you knew what love and support was. You, my dear friends, are and were the catalyst for three distinct moments in my life that I was able to do what I did because of love and support from you. It is not necessarily […]
I Forgive
Preface: This is probably the most difficult thing I have written in my life. I realized two things after I wrote this – I am writing and posting from a place of strength and I did not do anything wrong. One of my dearest friends says to me, “You have to let it go.” So, […]
Palms Up
It is tough business getting older. I wouldn’t recommend it. Don’t get me wrong, I want to be here but being human is a complex business to handle. Each year as my birthday approaches, it is like Steven Tyler singing those high “Dream On” cords, Axel rose screaming into the microphone, Slash whaling on his […]
God Willing
I have been doing this a long time – managing my health; overcoming, breathing, believing in the miracle of what can be, what honestly what should be. In what I see life could be, given thought, openness, gratitude, and for fuck sake, some fucking relief. A pause. A stopping of the continuum, to look at […]
Simply
“Happiness is having that one friend who calls you up out of the blue to find out how you are, listens a little as you jabber and indicate you were about to mow the lawn, and then shows up while you are mowing the lawn with all the ingredients for dinner, makes the dinner while […]